“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Nearly 90% of those with scleroderma have Raynaud’s symptoms. This is why Raynaud’s can be a “red flag” that helps lead to diagnosis and treatment of scleroderma. And for Aneila, dx…
February is #RaynaudsAwarenessMonth, so let’s discuss the relationship between #RaynaudsPhenomenon and #scleroderma. Raynaud’s phenomenon is a common condition, and most people with Raynaud’s will not develop scleroderma. The majority of people living with Raynaud’s…
Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, nearly 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,…
Calling all scleroderma advocates—February is Rare Disease Awareness Month and Raynaud’s Awareness Month! The SRF stands with the rare disease community because being rare does not mean being alone. And…
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…