Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, nearly 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,…
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Calling all scleroderma advocates—February is Rare Disease Awareness Month and Raynaud’s Awareness Month! The SRF stands with the rare disease community because being rare does not mean being alone. And…
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
Again, thank you all SO MUCH for making Raynaud's Awareness Month a meaningful opportunity. As we look back at everything you shared this month, here are two more spotlights on...
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This #RaynaudsAwarenessMonth we asked you to spread awareness, share your personal stories, or suggest life hacks for others to try, and we’ve been blown away by your responses! Today we're spotlighting just...
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Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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This Raynauds Awareness Month, Dani shares her story and advocates for research. She was diagnosed with scleroderma in 2016—after noticing the classic signs of Raynaud's phenomenon. “Time has made me...
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For this first story of Scleroderma Awareness Month, meet Liz, who has lived with scleroderma since 1998. This summer marks an important landmark for her: 18 years post heart and…
Anne Terrell is a mother of two who loves, “music, nature, dogs, and spending time with friends and family.” She also lives with scleroderma. Anne Terrell received her diagnosis in…
This Raynaud’s Awareness Month we asked you to share your personal stories, tips, or life hacks with us, and we’ve been blown away by the response! Today, we’re spotlighting three…
