February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Lorena was diagnosed with scleroderma in 2021, and she wants a cure found for this disease. “When I went to see my scleroderma doctor for the first time, I was…
In 2015, Mercy began to notice changes in her health. However, it wasn’t until 2017 that she received a definitive diagnosis: scleroderma. “I was progressing pretty quickly at the time,”…
"I lost a lot of me." This is what Cynthia, dx 2021, shared about living with scleroderma. It's just one of many reasons why she participates in research that accelerates...
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When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma....
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Introducing the BeCause We Care bracelets, created by the Stamos Family and My Saint My Hero to support the Scleroderma Research Foundation. In honor of Bob Saget’s dedication to raising…
Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
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Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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Thinking back to her early symptoms, Kierra (dx 2020) remembers how “simple things like walking became a chore. My body felt like it was breaking down and I couldn't figure...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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