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Raynaud’s Awareness Month + Rare Disease Day Resources

By January 31, 2025No Comments

February is an important month for the scleroderma community as we raise awareness for both Raynaud’s Awareness Month and Rare Disease Day. In this article, we’ve compiled essential resources to help you get involved!


Use Our Custom Raynaud’s Awareness Profile Frame

Show your support by updating your social media profile with our Raynaud’s Awareness frame! This small but powerful action helps spread awareness throughout the month.

Download the Raynaud's Awareness Profile Photo Frame

Discover Shareable Informational Resources

Learn more about scleroderma and find valuable educational materials on the our website. Share these resources to help spread awareness about scleroderma, its complications, and research that is advancing toward a cure for this challenging disease.


Rare Disease Day 2025 Meeting

Join the free FDA-NIH Rare Disease Day event on February 27–28 (in person or virtually). This event features inspiring panels, rare disease stories, and groundbreaking research collaborations. Don’t miss this opportunity to engage with experts and advocates in the rare disease community.

Learn More and Register

Rare Disease Day Social Media Toolkit

Help spread awareness by using the official Rare Disease Day Social Media Toolkit! This resource includes shareable graphics, messaging tips, and key hashtags to amplify your impact on social media.

Access the Toolkit

Win an SRF Swag Bag!

This February, we’re excited to give back to scleroderma advocates with a Swag Bag giveaway—featuring mittens, a tote bag, ear and hand warmers, and more!

To qualify for the giveaway, join us by taking action in your community to raise awareness or funds for Raynaud’s Awareness Month and Rare Disease Day.

Here are some ideas to get you started:

🌟 Start an online fundraiser and share with your community

🌟 Donate a percent of sales from your business

🌟 Host a lemonade stand

🌟 Reshare SRF posts and videos on social media

🌟 Share info through our print-at-home flyers about scleroderma at your business, office, or community center (link in bio!)

Once you’ve participated, fill out our giveaway form to tell us about your activity and share any photos you have. Each entry will be included in a random drawing for one of our exclusive swag bags!