“I have scleroderma, so I’m asking you to say it.” —Cynthia, dx 2021
Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those affected. This lack of awareness can lead to delays in treatment and diagnosis, and hinder progress in finding a cure.
In this video, Cynthia opens up about her difficult experiences seeking care for scleroderma and highlights the crucial need for awareness and education about this disease.
Thank you so much to Cynthia and her brother for making this project to spread the word about scleroderma.
Even though Scleroderma Awareness Month is now over, it’s still just as important to #SayScleroderma. Together, we can make sure scleroderma is heard until we find a cure.
