Because not enough people know what scleroderma is or does.
Because lack of awareness causes delays in treatments and diagnosis.
This is why we’re launching #SayScleroderma for Scleroderma Awareness Month. Throughout June, we’ll be featuring stories from community members on our social media, along with various ways you can make a difference by using your voice and influence.
Start spreading the word now:
1. Download the social media toolkit. This has instructions and examples for spreading awareness on social media.
2. Share your story. Use photos, videos, and words to tell people why you care about saying scleroderma.
3. Keep the conversation going. Throughout the month—whether online or in person—ask your friends, families, and neighbors to join you and #SayScleroderma.