Today is Rare Disease Day. This month, you all have done so much to raise awareness of what it means to live with a rare disease, like scleroderma.
Scleroderma, or systemic sclerosis, affects approximately 100,000 people in the United States and can strike women, men, and children of all ages. Thank you SO MUCH for keeping scleroderma and rare diseases in the public eye!
There are still ways you can raise awareness today as part of this global effort:
🔹 Share information about what living with a rare disease is like using the hashtags #RareDiseaseDay, #sayscleroderma, or #ShowYourStripes
🔹 Watch and share Behind the Mystery featuring the Scleroderma Research Foundation, which is part of their Rare Disease Day special episode, at https://bit.ly/behindthemystery-srf
🔹 Have a conversation with someone today about rare diseases, like scleroderma
Looking for facts to share about scleroderma? Check out https://bit.ly/srf-resources. Thank you again for spreading the word & making a difference.
