October 23rd marks what would have been the 71st birthday of Sharon Monsky, the founder of the Scleroderma Research Foundation. Sharon launched the SRF in 1987 with a vision—knowing that…
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November is Pulmonary Arterial Hypertension (PAH) Month. To kick off this month, we’re featuring Nola, who candidly shares her journey living with both scleroderma and PAH in this video. "Being...
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"Making information about scleroderma accessible to children and the public is very important to me," says Alvin, C. (dx 2017). His determination to educate others led him to write a...
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"As an athlete, you push through pain, so I didn’t think too much of it at first," Erion M. (dx 2008) says of his initial scleroderma symptoms. In 2006, Erion...
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"By holding this fundraiser, I hope that others are inspired to learn more about scleroderma and about people within the community," says Sofía Q., (dx 2006) who recently hosted a...
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"Emotionally, it has been a struggle, and physically, it has been very isolating," says Diana V., describing the impact of scleroderma on her daughter, Aryzabella S. (dx. 2019), pictured right....
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On August 28, Ally's Allies hosted the second annual "Golfing for a Cure" event benefiting the Scleroderma Research Foundation. SRF Cure Crew member Ally W. was diagnosed with scleroderma in...
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"I'll forever be grateful for an early diagnosis," says Alex P., who was diagnosed with both scleroderma and interstitial lung disease (ILD) earlier this year in 2024. "I am lucky....
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“My father was the strongest man I knew, and I miss him every single day,” says Samantha C. of her father, Louis P. (dx 1990), who passed away in 2021....
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"My original symptoms were not concerning," says Payton C. (dx 2010). "Around 2008-2009, both my shoulders were always sore and aching, but I just took it as being caused by...
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