"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness...
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“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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It’s the rarest day of the year: #RareDiseaseDay! You all have blown us away with how you’ve engaged with raising awareness of rare diseases like #scleroderma. There are 6,000+ rare diseases,…
Nearly 90% of those with scleroderma have Raynaud’s symptoms. This is why Raynaud’s can be a “red flag” that helps lead to diagnosis and treatment of scleroderma. And for Aneila, dx…
February is #RaynaudsAwarenessMonth, so let’s discuss the relationship between #RaynaudsPhenomenon and #scleroderma. Raynaud’s phenomenon is a common condition, and most people with Raynaud’s will not develop scleroderma. The majority of people living with Raynaud’s…
February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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