It's the Scleroderma Awareness Month edition of our eNews! We're featuring a couple ways people living with scleroderma have helped raise awareness this month, from state proclamations to a documentary...
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When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma....
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This month's eNews is packed with opportunities and stories. Learn how you can participate in the SRF Patient Forum, what you can do to raise scleroderma awareness, and how you...
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Join us in giving a big hand to SRF Cure Crew members Beth and Lisa for hosting a pickleball tournament fundraiser—raising over $37,000 for scleroderma research! Beth is a long-time…
In this month's eNews, there are lots of great stories and updates. Read how the Stamos Family is fundraising for a cure, how one woman dealt with scleroderma renal crisis,...
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Introducing the BeCause We Care bracelets, created by the Stamos Family and My Saint My Hero to support the Scleroderma Research Foundation. In honor of Bob Saget’s dedication to raising…
Dear Friends, Thank you for your dedication to the mission of the Scleroderma Research Foundation (SRF) where research is at the center of everything we do. Below you’ll find an update on...
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It’s National Kidney Month, and for those living with scleroderma, approximately 15% are affected by kidney problems. As one of those affected, Falguni (dx 2020) shares how her experience with scleroderma...
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Join us in welcoming the University of California, Los Angeles to the CONQUER Registry! UCLA recently joined the CONQUER Registry—a highly collaborative consortium of some of the largest scleroderma centers…
Meet the Scleroderma Research Foundation’s newest staff member. Please join us in welcoming our new Development Database Manager, Ruben Cordoba. Ruben brings a strong analytical mindset and technical expertise to…
