In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
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February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic...
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Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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Research is the best hope for finding a cure. This is why in 2018, the SRF launched CONQUER (COllaborative, National QUality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of...
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Long-time SRF Cure Crew members and scleroderma advocates, the Connors-McBride and Zini family, continued their seven-year tradition of producing a comedy show called "Best Medicine" to raise funds for a...
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This Raynauds Awareness Month, Dani shares her story and advocates for research. She was diagnosed with scleroderma in 2016—after noticing the classic signs of Raynaud's phenomenon. “Time has made me...
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As we share our February edition of eNews, it's been nearly a month since we lost SRF Board Member and dear friend Bob Saget. In this edition, SRF Chairman of...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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If you missed our most recent webinar, don't worry—you can now watch it online. Learn more about GI involvement in systemic sclerosis in a webinar presented by SRF-funded researcher Dr....
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We remain overwhelmed by the outpouring of involvement and support from people across the world who are putting their talent and treasure towards the SRF, finding their own personal ways…
