“I think one year in my early 20’s I went to the ER a total of 33 times because I wasn’t receiving help and didn’t know where to turn to,"...
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Anna G. (dx 2019) was just seven years old when she began displaying subtle but concerning symptoms. "The earliest signs that something wrong was when we noticed that her left...
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For years, Beatrice V. (dx 2023) searched for answers, visiting an array of specialists who were unable to piece together her puzzling symptoms. “Over and over, I was told it...
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Being diagnosed with scleroderma is uncommon, but for Missa P. (dx 2023), the experience was even more unique—as it was one she shared with her late mother, Karen (dx 2012)....
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February is Raynaud's Awareness Month, and we’re sharing stories that highlight the real impact of Raynaud’s and scleroderma. In this video, Anita reads a heartfelt letter written by her daughter,...
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February is an important month for the scleroderma community as we raise awareness for both Raynaud’s Awareness Month and Rare Disease Day. In this article, we’ve compiled essential resources to...
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Life was different before Cathi became ill. "Our family enjoyed skiing vacations in the winters and relaxing at the beach in the summers," says Tom. But in January of 2007,...
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