Throughout June, we invited you to join us in the #SayScleroderma campaign by sharing your own stories and pictures on social media. The response has been incredible. Your posts, photos,...
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In this edition of eNews, help us kick off our Annual Research Challenge, learn about the recent NIH workshop co-sponsored by the SRF, discover how members of the scleroderma community...
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Governors Brad Little (ID) and Jay Inslee (WA) have signed scleroderma awareness proclamations and have been very supportive of Scleroderma Outreach Northwest and the Scleroderma Research Foundation. These proclamations have provided the…
This year, the SRF was proud to be represented by our Chief Medical Officer, Dr. Gregory Gordon, at the EULAR Congress 2024 in Vienna, Austria. Held from June 12-15, the…
San Francisco, CA (June 25, 2024)—CONQUEST, a highly innovative platform clinical trial conceived of and led by the Scleroderma Research Foundation (SRF) and designed to rapidly advance promising treatments for...
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This month, members of the scleroderma community joined us to #SayScleroderma by sharing their valuable lifehacks, which are practical tips and strategies for navigating life with scleroderma. These lifehacks are...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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We are honored to announce that CONQUER has enrolled its 1,000th participant! 🎉 In 2018, the SRF launched the CONQUER Registry (an acronym for COllaborative National QUality and Efficacy Registry)—a first-of-its-kind nationwide…
“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
