This October, the SRF is joining the Raynaud’s Association in recognizing Raynaud’s Awareness Month, to raise awareness around this condition and its its connection to scleroderma. What is Raynaud’s phenomenon?…
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The 5th Annual ILD Day is coming up on September 10: mark your calendar for these opportunities to learn and get involved! Interstitial lung disease (ILD) is a group of...
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On October 23, we celebrate the birthday of Sharon Monsky, founder of the SRF. Though she knew a cure for scleroderma might not come in her lifetime, Sharon believed deeply...
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Cool Comedy • Hot Cuisine is around the corner! Plus: the ILD webinar recording is now available to watch on YouTube. Read Now
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Wondering if you could qualify to join a clinical trial for people living with scleroderma? Let’s talk about what determines your eligibility. Clinical trials can offer access to promising new...
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"I’ve learned that I’m stronger and more adaptable than I gave myself credit for," says Bri S. (dx 2020). "A lot has had to change since scleroderma forces you to...
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“I want people to know that you can live a full life with chronic illness,” shares She Shutes (diagnosed in 2017). “It’s not over—it’s just different.” In this video, she...
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ILD Day is coming up! Join us in raising awareness about interstitial lung disease (ILD) and supporting people who live with this living with this lung condition alongside scleroderma. There...
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Jordan C.’s passion for scleroderma research is deeply personal—his sister was diagnosed with juvenile diffuse systemic scleroderma. Wanting to make a difference, Jordan turned to what he knows best: music....
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Join SPIN for their online event on November 22! The SRF is partnering with the Scleroderma Patient-centered Intervention Network (SPIN) and international partners for "What’s New in Scleroderma Research: An...
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