As the year comes to a close, we’re deeply grateful to you for being part of this unstoppable community driving progress toward a cure. The Scleroderma Research Foundation exists for...
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"A year after I was diagnosed with scleroderma, I started to get very winded walking very short distances," Jackie L. remembers. "After testing, I received a diagnosis of interstitial lung...
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Today, on the 29th anniversary of its release, we're remembering late SRF Board Member Bob Saget’s landmark film, “For Hope.” Bob directed and executive produced this moving story which aired...
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“Living with PAH and scleroderma has been difficult, but it was manageable,” says Barb H. (dx 1994.) “It never stopped me from doing something I really wanted to do.” Barb...
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Jeff Ross Hosts Star-Studded Evening in Partnership with the New York Comedy Festival Featuring Hannibal Buress, Kelsey Cook, Jim Gaffigan, and Nikki Glaser, with Special Guest Katie Couric Adam Duritz...
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CCHC is next week! Plus: Join us for PAH Awareness Month, and read about the ACR 2025 Conference. Read Now
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Pulmonary arterial hypertension (PAH) is a serious lung condition that affects blood flow between the heart and lungs. For people living with scleroderma, it is one of the most common...
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“My journey to diagnosis was long and frustrating,” says Monika H. (dx 2017). “The first symptoms appeared as swelling and tingling in my fingers and toes, which I initially brushed...
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