"Once they start talking [about scleroderma], then they start researching—and that's a step closer to the cure." — Sunny Sidhu (dx 1987) Sunny Sidhu was a filmmaker, dedicated advocate, and...
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For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences...
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When managing scleroderma, it’s important to understand interstitial lung disease (ILD), which is a complication that can affect breathing and lung function. 1. ILD is a common complication of systemic...
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Last week, the Kosmach family and their local community came together for Bet on a Cure, continuing a cherished casino night tradition of supporting scleroderma research in memory of their...
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Check out the latest research updates from the wider community from this month. While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma. ...
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Because scleroderma often affects the digestive system, many people living with the disease experience gastrointestinal (GI) issues that can impact nutrition and overall health. The GI tract is the body...
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“Being able to be part of a study that could help treat—or even save—a person’s life is a humbling experience,” Amy G. (dx 2001) says of her decision to participate...
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A new study published in Nature, led by SRF-funded investigator Ryan Flynn, PhD, sheds light on how the body controls the growth of new blood vessels, a process known as angiogenesis. By...
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Register now for the SRF Scleroderma Patient Forum—plus the latest column from Dr. Gregory Gordon and SRF-funded research in Nature. Read Now
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Register now to join us in celebrating five years of the SRF Scleroderma Patient Forum! 🌐 Each June, this event brings together leading experts and the scleroderma community together for...
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