For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments.
“Scleroderma affects people in different ways, but we still really don’t know that much about this disease,” says Scout. “Research can help find treatments that can cater to the person.”
At the Scleroderma Research Foundation, we’re committed to advancing research by bringing leading experts together to work toward a cure. But we can’t do it alone—when we join forces, we can raise greater awareness and make a bigger difference than any of us could on our own.
That’s why we’re teaming up with other dedicated organizations this Scleroderma Awareness Month to #SayScleroderma. The Scleroderma Research Foundation, Scleroderma Canada, Scleroderma Foundation of California, Scleroderma Foundation of Greater Chicago, Scleroderma Outreach Northwest, and more are working together to raise awareness.
Why #SayScleroderma? Because everyone should know what this disease is and does. Because no one should have to live with this disease. Because a lack of awareness leads to delays in diagnosis and treatment. Because research is the best hope for a cure.
