Last week, we held our inaugural Patient Forum, "Collaborating for a Cure." We were honored to have experts in the field of scleroderma research partnering with us to share information...
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Once again in June, Grove Wine Bar will join the Scleroderma Research Foundation’s campaign, #SayScleroderma, for Scleroderma Awareness Month. Over 400 employees will wear T-Shirts branded with the Grove, SRF,...
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A huge thank you to Jeff Ross for his dedication as a longtime supporter of the SRF and scleroderma advocate. As a close friend of SRF Board Member Bob Saget,...
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For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
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Today is the first day of Scleroderma Awareness Month. This month has always been marked by the remarkable way the scleroderma community comes together. So, we’re kicking off this month…
A big thank you to Jodie Sweetin for playing for the SRF on Name that Tune—we recently received a stunning gift of $10,000 in prize money after she won against...
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After two years of virtual meetings, the SRF's Science Workshop returned as an in-person event! This past weekend, over 50 clinicians and scientists gathered in San Francisco to discuss innovations in scleroderma...
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Today would have been Bob Saget's 66th birthday. It still seems unimaginable that we would lose him so soon, and all of us at the SRF miss him more than...
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For Teri, living with scleroderma means not only managing physical challenges but also lack of control she feels while doing so. “Scleroderma is part of my conscious mind every day,”...
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Jennifer was diagnosed with scleroderma in 2018—years after seeking help. “I started having Raynaud's attacks in 2013 along with other weird things like red blotches all over my face, later...
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