“Research is the key to not only finding a cure but to improving treatments and quality of life for those living with scleroderma,” says Alex P. (dx 2022), pictured above in her new #SayScleroderma sweatshirt. “The treatment options available for scleroderma today have improved greatly from even just 10 years ago and that’s all due to research!”
Research and awareness go hand in hand—and that’s the idea behind #SayScleroderma.
“I #SayScleroderma because many people have no idea what scleroderma is,” Alex says. “Unless there is scleroderma awareness, there will never be better treatments or a cure.”
Launched by the SRF, this movement is built on the belief that the more people who know about scleroderma, the closer this community gets to a world without it. June is Scleroderma Awareness Month, and every person who speaks up and joins in to #SayScleroderma helps make a future without scleroderma possible.
“People pay attention to clothing—I know I do—and by wearing my sweatshirt out, I know that it can either start a conversation about what scleroderma is, or people who see it will be curious enough to google ‘scleroderma’ and learn on their own,” she says. Now, you can join Alex in wearing your support on your sleeve. The SRF Merch Shop is officially open, and you can score your #SayScleroderma hats, tees, sweatshirts, bags, and more.
While the SRF does not receive any funds or profits through shop sales, this store was launched so that the community can raise awareness together in style. Order now and you’ll have your gear in hand just in time for World Scleroderma Day on June 29.
