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Living with Scleroderma

A Legacy of Hope: How Sharon Monsky’s Vision Continues to Drive Scleroderma Research

By October 23, 2025October 30th, 2025No Comments

On October 23, we celebrate the birthday of Sharon Monsky, founder of the SRF. Though she knew a cure for scleroderma might not come in her lifetime, Sharon believed deeply in the power of research to drive progress and offer hope.

Her tireless leadership transformed the SRF into the nation’s leading nonprofit funder of scleroderma research—and her impact continues to shape our work today.

To honor Sharon’s enduring commitment to ending this disease, consider joining the Sharon Monsky Legacy Society by making a planned gift to the SRF. Planned gifts offer a meaningful way to ensure scleroderma research continues in the future, until a cure can be found.

“My dear friend Sharon was always thinking about the future—she wanted the SRF to keep driving progress long after her,” says SRF Board Member Susan Feniger. “Supporting that vision is a way we can honor her.”

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