As someone living with scleroderma, Tiffany P. believes in the power of research to drive change. This month, she’s joining us to #SayScleroderma and share why scleroderma research matters to her.
“I think it’s so important for people to get involved in research,” she says. “This disease is so rare, and we need participation from people living with scleroderma in order to move research forward and find a cure.”
At the Scleroderma Research Foundation, we’re pushing research forward by funding innovative studies and uniting experts to find a cure. But we can’t do it on our own—we know that together, we can spread more awareness and make a bigger impact than any one of us could alone.
That’s why we’re teaming up with other dedicated organizations this Scleroderma Awareness Month to #SayScleroderma. The Scleroderma Research Foundation, Scleroderma Foundation of California, Scleroderma Foundation of Greater Chicago, Scleroderma Outreach Northwest, and more are working together to raise awareness.
Why #SayScleroderma? Because everyone should know what this disease is and does. Because no one should have to live with this disease. Because a lack of awareness leads to delays in diagnosis and treatment. Because research is the best hope for a cure.
There are so many ways to get involved this June. Whether you’re sharing your story, posting on social media, or hosting a fundraiser, every action helps move us closer to a world without scleroderma.
