While the Scleroderma Research Foundation remains relentlessly focused on accelerating research toward better treatments and a cure, we are equally committed to helping people live better with the disease today. That’s why the SRF is proud to partner with the Scleroderma Patient-Centered Intervention Network (SPIN) to sponsor a new small-group program of SPIN-SELF, a self-management course designed specifically for people living with scleroderma.
Developed by SPIN in collaboration with researchers, healthcare professionals, and patient partners, SPIN-SELF was rigorously tested in a research study that found it to be effective in helping people living with the disease to manage the physical, emotional, and day-to-day challenges of living with scleroderma.
What’s included:
- A 9-module online toolkit covering the challenges that matter most—pain, fatigue, digestion, nutrition, appearance changes and other topics
- 8 weekly group video sessions led by a trained facilitator, who is also living with scleroderma
- A small, supportive group of just 8–10 participants
Through the SRF’s sponsorship, this program is available at no cost to participants, ensuring that more people can access practical tools, expert guidance, and peer support wherever they are in their journey.
We are proud to support this innovative collaboration and provide more resources for the community while continuing to focus on driving meaningful research progress to end this disease.
Groups run only 2–4 times a year; spots are limited and will fill quickly.
Take the next step: secure your place in an upcoming group!
