Today is Rare Disease Day—a global movement dedicated to raising awareness and improving access to diagnosis, care, and treatment for people living with rare diseases. You can make a difference by learning, sharing, and speaking up.
There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this disease, the effects can be life-altering. Raising awareness of scleroderma is essential, as it helps support earlier diagnosis, improve access to care, and drives research toward a cure.
🖼️ Show your support for those with rare disease by using the official Rare Disease Day social media! Add a profile frame to your photo and update your cover image with a ready-made banner to help spread awareness and stand in solidarity with people living with rare diseases.
🎬 Check out Behind the Mystery—a powerful documentary short film created for Rare Disease Day that shines a light on scleroderma. The SRF was featured in this special episode of the recurring series devoted to rare and genetic diseases, which aired on The Balancing Act on the Lifetime network for Rare Disease Day 2023.
Hear directly from members of the scleroderma community as they share what it’s like to navigate a rare disease. Their voices put a face to rare disease and remind us why awareness matters.
💬 Share your Raynaud’s story with others in person or online—how it affects your daily life, how you manage symptoms, or what you wish others understood.
🌐 Post about why rare disease awareness matters to you and help others feel informed and less alone.
Thank you for lifting up Rare Disease Day with your stories, energy, and advocacy! This community is helping drive awareness further than ever before.
