February is here, and we’re turning up the volume for #RaynaudsAwarenessMonth and #RareDiseaseDay. 📣
There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this disease, the effects can be life-altering. Raising awareness of scleroderma is essential—it helps support earlier diagnosis, improve access to care, and drives research toward a cure.
One of the first signs of scleroderma is Raynaud’s phenomenon, and nearly 90% of people living with scleroderma experience this complication. Raynaud’s occurs when reduced blood flow causes fingers or toes to change color, feel numb, or become painful.
All of this is why, this month, we’re asking you to join us in making some noise and taking action to raise awareness for both Raynaud’s and rare diseases.
This Raynaud’s Awareness Month, take action and be entered in our special giveaway for an SRF swag bag! Here are a few ways to get involved:
🖐 Join our FREE Raynaud’s & Digital Ulcers Webinar on February 3: Don’t miss this chance to hear from a scleroderma expert and deepen your understanding of how Raynaud’s and digital ulcers impact people living with scleroderma.
🖼️ Use our custom Raynaud’s Awareness profile frame: Add our frame to your profile photo and help spread awareness around this common complication of scleroderma.
💬 Share your Raynaud’s story with others in person or online—how it affects your daily life, how you manage symptoms, or what you wish others understood.
This Rare Disease Day, join us in raising awareness and elevating rare disease voices. Here’s how you can take part:
🩺 Attend the NIH Rare Disease Day Event on February 27: Take part in a national in-person event (with virtual livestream) highlighting rare disease awareness, research collaboration, and advocacy.
🔬 Join the FDA Rare Disease Day Meeting on February 23: Hear from FDA leaders about the role of patient engagement in rare disease research initiatives.
🌐 Post about why rare disease awareness matters to you and help others feel informed and less alone.
