For people living with rare diseases, recognizing early signs and symptoms is critical. In scleroderma, Raynaud’s phenomenon is often one of those first warning signs.
That’s why February—Raynaud’s Awareness Month, with Rare Disease Day on February 28—is such an important time for the scleroderma community, and we’re gearing up for a month of action!
Below, you’ll find resources, events, and shareable social media graphics to help raise awareness and make an impact all month long.
🔹Join our FREE Raynaud’s & Digital Ulcers Webinar on February 3: Don’t miss this chance to hear from a scleroderma expert and deepen your understanding of how Raynaud’s and digital ulcers impact people living with scleroderma.
🔹 Use our custom Raynaud’s Awareness profile frame: Add our frame to your profile photo and help spread awareness around this common complication of scleroderma.
🔹 Take action and enter our Raynaud’s Awareness raffle: Get involved in awareness or fundraising efforts and be entered to win SRF swag.
🔹 Attend the NIH Rare Disease Day Event on February 27: Take part in a national in-person event (with virtual livestream) highlighting rare disease awareness, research collaboration, and advocacy.
🔹Join the FDA Rare Disease Day Meeting on February 23: Hear from FDA leaders about the role of patient engagement in rare disease research initiatives.
🔹Share your story: Help raise awareness by sharing why Raynaud’s and rare disease visibility matters to you on social media and within your community.
