“Being able to be part of a study that could help treat—or even save—a person’s life is a humbling experience,” Amy G. (dx 2001) says of her decision to participate in scleroderma research.
“I was always motivated by research because this disease is so rare and is a personalized disease for each individual,” she explains. “Research and clinical trials are a must to help patients sustain quality of life.”
Participating also gave Amy a sense of empowerment, knowing her voice mattered and that her experience could help shape care for others. “The researchers are very focused on our wants and needs, and they truly take our perspective into consideration,” she says.
If you’re curious about clinical trials or wondering whether research might be right for you, SRF Carebox Connect can help you explore options based on your location and diagnosis. By completing a simple questionnaire, you can learn about nearby clinical trials you may qualify for and what participation involves.
