The SRF mourns the loss of former board member Daniel Morton, who passed away last month. He joined the board of the SRF in the early ’90s, after reading a…
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We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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In this month's eNews, we're excited to share that you can now register for Cool Comedy • Hot Cuisine, a tribute to Bob Saget. There's also information on other community...
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If you haven't listened yet, Episode 25 of the Mogil's Mob podcast is out. It features host Ann Mogilevsky, who has scleroderma, in conversation with SRF Board Member Sharon Dobie....
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Today is #WorldSclerodermaDay, a day created to tell people what it means to have scleroderma and recognize those who live with it. Join us today as we #SayScleroderma so that…
In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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If you are in Austin, TX, you can support scleroderma research by going out to eat! Stop by any of the four Grove Wine Bar locations on Tuesday, June 28th...
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Our third story of Scleroderma Awareness Month starts more than 31 years ago. Chip had “what I thought was an ingrown fingernail on my right index finger.” A game of...
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SRF funded-investigator Dr. Howard Chang of the Stanford University School of Medicine is working on an innovative project to understand disease-relevant mechanisms in scleroderma: his novel Twin Study is investigating differences in genetically identical twins where one twin has scleroderma and...
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“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
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