"I've learned that I'm absolutely a fighter,” says Tiffany S. (dx 1989). "Scleroderma has shown me how resilient I am." "I've never known a life other than fighting and living...
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The goal of all clinical trials is to be as inclusive as possible. However, it is necessary to develop specific inclusion and exclusion criteria. The reason for this is to...
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On July 21, Strike Out Scleroderma Day featured specially designed Strike Out Scleroderma t-shirts and exceeded expectations by selling over 100 tickets! Spearheaded by Scleroderma Outreach Northwest Board Member Dee...
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It's time for the annual Research Challenge, where we celebrate and support the hard work of the SRF-funded investigators. This year, we are pleased to highlight the work of Dr....
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"I never imagined I would be grateful for my diagnosis, but it has helped me understand myself better and given new meaning to my life,” says Nafisa Z. (dx 2020)....
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Introduction time—please join us in welcoming the SRF’s new Senior Staff Accountant, Neha Pamboo! She is a seasoned finance and accounting professional with experience managing financial operations, reporting, and analysis…
Throughout June, we invited you to join us in the #SayScleroderma campaign by sharing your own stories and pictures on social media. The response has been incredible. Your posts, photos,...
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In this edition of eNews, help us kick off our Annual Research Challenge, learn about the recent NIH workshop co-sponsored by the SRF, discover how members of the scleroderma community...
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Governors Brad Little (ID) and Jay Inslee (WA) have signed scleroderma awareness proclamations and have been very supportive of Scleroderma Outreach Northwest and the Scleroderma Research Foundation. These proclamations have provided the…
