This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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For this first story of Scleroderma Awareness Month, meet Liz, who has lived with scleroderma since 1998. This summer marks an important landmark for her: 18 years post heart and…
Why #SayScleroderma? Because not enough people know what scleroderma is or does. Because lack of awareness causes delays in treatments and diagnosis. This is why we’re launching #SayScleroderma for Scleroderma…
May is on its way out, so that means it's time for the SRF's eNews. In this month's edition, read about a new study on mechanisms of scar formation in...
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The SRF Cure Crew members have always been an important voice for scleroderma awareness. They have raised substantial funds for the SRF's research, even during the pandemic. We celebrate and...
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Today we remember Teri and the generosity of how her family honored her. Teri had only been diagnosed with scleroderma for one year before the disease took her life at...
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Anne Terrell is a mother of two who loves, “music, nature, dogs, and spending time with friends and family.” She also lives with scleroderma. Anne Terrell received her diagnosis in…
We are pleased to announce that Dr. Harry C. "Hal" Dietz has joined the SRF's Scientific Advisory Board. He will join some of the most highly regarded scientists in the...
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If you missed our most recent webinar, don't worry—you can now watch it online on our YouTube channel. Learn more about CONQUER (COllaborative, National QUality and Efficacy Registry) and why...
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Meet Dr. Brittany Adler, an Instructor in Medicine at Johns Hopkins University and a rheumatologist in the JHU Scleroderma Center of Excellence. A new SRF-funded investigator in 2020, Dr. Adler...
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