Pulmonary arterial hypertension (PAH) is a serious lung condition that affects blood flow between the heart and lungs. For people living with scleroderma, it is one of the most common...
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The 5th Annual ILD Day is coming up on September 10: mark your calendar for these opportunities to learn and get involved! Interstitial lung disease (ILD) is a group of...
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“I want people to know that you can live a full life with chronic illness,” shares She Shutes (diagnosed in 2017). “It’s not over—it’s just different.” In this video, she...
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ILD Day is coming up! Join us in raising awareness about interstitial lung disease (ILD) and supporting people who live with this living with this lung condition alongside scleroderma. There...
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Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare...
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February is Raynaud's Awareness Month, and we’re sharing stories that highlight the real impact of Raynaud’s and scleroderma. In this video, Anita reads a heartfelt letter written by her daughter,...
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February is an important month for the scleroderma community as we raise awareness for both Raynaud’s Awareness Month and Rare Disease Day. In this article, we’ve compiled essential resources to...
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#GivingTuesday is tomorrow! 💙 Join us in raising funds and awareness for scleroderma research. Here are a few ways you can help: 1️⃣ Visit our Year-End Campaign page and click...
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Did you know that approximately 15% of people living with scleroderma have Interstitial Lung Disease (ILD)? Next week, Wednesday, September 14 is National ILD Day. We're joining forces again with...
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Dionna was seven years old when she lost her mother, Donna, to scleroderma. She says, “Scleroderma is a beast, the beast that took my mom away back in 2001.” That...
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