February is here, and we’re turning up the volume for #RaynaudsAwarenessMonth and #RareDiseaseDay. 📣 There are 6,000+ rare diseases, and scleroderma is one of them. For those living with this...
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For people living with rare diseases, recognizing early signs and symptoms is critical. In scleroderma, Raynaud’s phenomenon is often one of those first warning signs. That’s why February—Raynaud’s Awareness Month, with Rare...
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As the year comes to a close, we’re deeply grateful to you for being part of this unstoppable community driving progress toward a cure. The Scleroderma Research Foundation exists for...
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Looking for reliable information about interstitial lung disease (ILD) & scleroderma? Visit our newly updated webpage. 🫁 ILD is a serious complication of systemic sclerosis that can cause inflammation and...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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As the year comes to a close, we’re deeply grateful to you for being part of this unstoppable community driving progress toward a cure. The Scleroderma Research Foundation exists for...
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Pulmonary arterial hypertension (PAH) is a serious lung condition that affects blood flow between the heart and lungs. For people living with scleroderma, it is one of the most common...
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The 5th Annual ILD Day is coming up on September 10: mark your calendar for these opportunities to learn and get involved! Interstitial lung disease (ILD) is a group of...
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“I want people to know that you can live a full life with chronic illness,” shares She Shutes (diagnosed in 2017). “It’s not over—it’s just different.” In this video, she...
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ILD Day is coming up! Join us in raising awareness about interstitial lung disease (ILD) and supporting people who live with this living with this lung condition alongside scleroderma. There...
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