No matter how long you've lived with scleroderma, we want to hear from you! This new survey focuses on the day-to-day challenges of scleroderma, your healthcare experiences, and the caregiving needs you rely...
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Scleroderma doesn't come with an easy roadmap, but expert guidance can make all the difference. Your Scleroderma Questions, Answered is a monthly Q&A column featuring responses from the SRF’s Chief Medical...
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“Being able to be part of a study that could help treat—or even save—a person’s life is a humbling experience,” Amy G. (dx 2001) says of her decision to participate...
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From early symptoms to ongoing care, questions about living with scleroderma don’t stop after diagnosis. Your Scleroderma Questions, Answered is a Q&A column featuring responses from the SRF’s Chief Medical Officer,...
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From symptoms to treatment to day-to-day concerns, your scleroderma questions matter. "Ask a Doctor" is a new Q&A column featuring responses from the SRF’s Chief Medical Officer, Dr. Gregory Gordon,...
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CONQUEST is a platform clinical trial designed by the SRF to accelerate the development of potential new treatments for scleroderma. With 142 sites across 24 countries, CONQUEST is bringing together...
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Created by the SRF in 2018, CONQUER is a first-of-its-kind registry and biosample repository collecting real-world data from people living with scleroderma over time. By intentionally enrolling participants with various...
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When working on a rare disease like scleroderma, it can be difficult for scientists and drug companies to develop strong pipelines for new treatments. The Scleroderma Research Foundation (SRF) realized...
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Wondering if you could qualify to join a clinical trial for people living with scleroderma? Let’s talk about what determines your eligibility. Clinical trials can offer access to promising new...
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Thanks to CONQUER, researchers are uncovering insights that could help rheumatologists diagnose scleroderma. A new paper was recently published in the journal Arthritis and Rheumatology using data from the CONQUER...
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