This October, the SRF is joining the Raynaud’s Association in recognizing Raynaud’s Awareness Month, to raise awareness around this condition and its its connection to scleroderma. What is Raynaud’s phenomenon?…
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Join SPIN for their online event on November 22! The SRF is partnering with the Scleroderma Patient-centered Intervention Network (SPIN) and international partners for "What’s New in Scleroderma Research: An...
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Got a tip you think could help others living with scleroderma? 💡 Whether it's a way to manage joint pain, a strategy for dealing with calcinosis, or just a simple...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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Nearly 90% of those with scleroderma have Raynaud’s symptoms. This is why Raynaud’s can be a “red flag” that helps lead to diagnosis and treatment of scleroderma. And for Aneila, dx…
February is Raynaud's Awareness Month (#RaynaudsAwarenessMonth), so let’s discuss the relationship between Raynaud's phenomenon (#RaynaudsPhenomenon) and #scleroderma. Raynaud’s phenomenon is a common condition, and most people with Raynaud’s will not develop scleroderma....
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Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, approximately 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,...
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Calling all scleroderma advocates—February is Rare Disease Awareness Month and Raynaud’s Awareness Month! The SRF stands with the rare disease community because being rare does not mean being alone. And…
