"Because scleroderma is a 'rare' disease, it often doesn't get the same level of funding as others," Skylar H. explains. "My goal is to raise money to help ensure that...
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"People who are living with a rare disease are fighting something that few people understand," Nora R. says of her late husband Andy's (dx 2018) battle with scleroderma. "It's an...
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“Raynaud’s has never really sidelined me. I just roll with whatever my body serves up as best I can," says Julia P. (dx 2011). "Despite all that I have been...
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“I was diagnosed with scleroderma at 17 years old, which means I’ve lived more than half my life navigating this disease,” Kim (dx 2003) says. Her journey began at a...
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“I was diagnosed with lupus in 2003, and I attributed all these weird things happening to me to my lupus,” Yvette T. (dx 2016) says. For years, symptoms like Raynaud’s,...
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“I like to think of myself lucky in my unluckiness with scleroderma,” Cindy D. (dx 2023) says. "I’m thrilled to have done CAR T and have this chance. I hope...
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“Scleroderma impacts my life everyday," Alaina (dx 2013) says. "But I want to be able to show people that they ARE strong enough." Her journey with scleroderma began early in...
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After her scleroderma diagnosis, Tatiana B. (dx 2020) knew she wanted to help move research forward. A recommendation from her rheumatologist led her to enroll in CONQUER. “I feel deeply...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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“When I was first diagnosed, I was very depressed. I didn’t know what this illness would do to me,” Tameka N. (dx 2012) remembers. “Now, I just enjoy life as...
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