"She really did suffer from scleroderma in silence, and never once did she complain," says Peg M. of her late daughter Carolanne (diagnosed in 1987). "She was compassionate to those...
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"Scleroderma has changed my life," says Jaclyn R. (dx 2019). "It has made me understand how to have patience. I have learned to not take things for granted, and to...
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"Once they start talking [about scleroderma], then they start researching—and that's a step closer to the cure." — Sunny Sidhu (dx 1987) Sunny Sidhu was a filmmaker, dedicated advocate, and...
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For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences...
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"Because scleroderma is a 'rare' disease, it often doesn't get the same level of funding as others," Skylar H. explains. "My goal is to raise money to help ensure that...
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"People who are living with a rare disease are fighting something that few people understand," Nora R. says of her late husband Andy's (dx 2018) battle with scleroderma. "It's an...
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“Raynaud’s has never really sidelined me. I just roll with whatever my body serves up as best I can," says Julia P. (dx 2011). "Despite all that I have been...
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“I was diagnosed with scleroderma at 17 years old, which means I’ve lived more than half my life navigating this disease,” Kim (dx 2003) says. Her journey began at a...
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“I was diagnosed with lupus in 2003, and I attributed all these weird things happening to me to my lupus,” Yvette T. (dx 2016) says. For years, symptoms like Raynaud’s,...
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“I like to think of myself lucky in my unluckiness with scleroderma,” Cindy D. (dx 2023) says. "I’m thrilled to have done CAR T and have this chance. I hope...
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