“I practice gratitude daily. Because I lived through months of limited mobility and real fear, I do not take ordinary moments for granted,” says Monique H. (dx 2018). June is...
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"I choose to #SayScleroderma because the initial isolation and despair I felt upon diagnosis is something I want others to avoid," Ronna B. (dx 2022) says. This Scleroderma Awareness Month,...
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"My story with Scleroderma has been a silent one," says Carmen (dx 2014). "I have always been very active and it was very difficult to notice my symptoms until they...
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"When I first received my diagnosis, I made a commitment to be involved in research, advocacy, and awareness," says Charles (dx 2025). And this Scleroderma Awareness Month, he meant it....
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"Research is the key to not only finding a cure but to improving treatments and quality of life for those living with scleroderma," says Alex P. (dx 2022), pictured above...
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"She handled everything that came her way with so much grace and strength, and she never complained," says Taylor S. of her late aunt Carol (diagnosed in 2023). "No matter...
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"She really did suffer from scleroderma in silence, and never once did she complain," says Peg M. of her late daughter Carolanne (diagnosed in 1987). "She was compassionate to those...
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"Scleroderma has changed my life," says Jaclyn R. (dx 2019). "It has made me understand how to have patience. I have learned to not take things for granted, and to...
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"Once they start talking [about scleroderma], then they start researching—and that's a step closer to the cure." — Sunny Sidhu (dx 1987) Sunny Sidhu was a filmmaker, dedicated advocate,...
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For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences...
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