Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
Read More
Anyone can be diagnosed with scleroderma, including children. Even though scleroderma usually manifests between the ages of 30 and 50, it affects approximately three out of every one million children,...
Read More
In 2018, the SRF launched CONQUER (COllaborative, National Quality and Efficacy Registry), a first-of-its-kind nationwide, longitudinal registry of scleroderma patients. For those who live with scleroderma, participating in CONQUER is...
Read More
As we say hello to March, we're sharing this month's edition of eNews. Highlights include: ➡️ Two of Bob Saget’s friends, John Mayer and Candace Cameron Bure, honor his dedication...
Read More
Again, thank you all SO MUCH for making Raynaud's Awareness Month a meaningful opportunity. As we look back at everything you shared this month, here are two more spotlights on...
Read More
On a warm Texas evening this February, friends, and family gathered to play casino games, bet on silent auction items, and win raffle prizes at the 12th Annual Bet on...
Read More
This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
Read More
This #RaynaudsAwarenessMonth we asked you to spread awareness, share your personal stories, or suggest life hacks for others to try, and we’ve been blown away by your responses! Today we're spotlighting just...
Read More
Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
