Looking to refresh on everything that's happened in June and catch up on the latest scleroderma news? Check out the SRF's eNews: June Edition. In addition to recapping highlights from...
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In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
In this fourth story of Scleroderma Awareness Month, Jamie shares her passion for spreading the word about scleroderma. “I do not want future generations to have this bombshell diagnosis dropped…
For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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For this first story of Scleroderma Awareness Month, meet Liz, who has lived with scleroderma since 1998. This summer marks an important landmark for her: 18 years post heart and…
Why #SayScleroderma? Because not enough people know what scleroderma is or does. Because lack of awareness causes delays in treatments and diagnosis. This is why we’re launching #SayScleroderma for Scleroderma…
May is on its way out, so that means it's time for the SRF's eNews. In this month's edition, read about a new study on mechanisms of scar formation in...
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Anne Terrell is a mother of two who loves, “music, nature, dogs, and spending time with friends and family.” She also lives with scleroderma. Anne Terrell received her diagnosis in…
We are pleased to announce that Dr. Harry C. "Hal" Dietz has joined the SRF's Scientific Advisory Board. He will join some of the most highly regarded scientists in the...
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