"My original symptoms were not concerning," says Payton C. (dx 2010). "Around 2008-2009, both my shoulders were always sore and aching, but I just took it as being caused by...
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"I've learned that I'm absolutely a fighter,” says Tiffany S. (dx 1989). "Scleroderma has shown me how resilient I am." "I've never known a life other than fighting and living...
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"I never imagined I would be grateful for my diagnosis, but it has helped me understand myself better and given new meaning to my life,” says Nafisa Z. (dx 2020)....
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Throughout June, we invited you to join us in the #SayScleroderma campaign by sharing your own stories and pictures on social media. The response has been incredible. Your posts, photos,...
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness...
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“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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