Today is Rare Disease Day. This month, you all have done so much to raise awareness of what it means to live with a rare disease, like scleroderma. Scleroderma, or systemic sclerosis,…
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February is Black History Month. As we celebrate the rich culture of Black Americans, let’s raise awareness of how scleroderma affects this community. Research shows that African Americans tend to have…
Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, approximately 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,...
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Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
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Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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UPDATE: This event has now passed. Save the date: The Annual SRF Patient Forum is back this year on June 1, 2023! "Collaborating for a Cure," the SRF Patient Forum,...
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Thinking back to her early symptoms, Kierra (dx 2020) remembers how “simple things like walking became a chore. My body felt like it was breaking down and I couldn't figure...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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Today would’ve been the 69th birthday of Sharon Monsky, the SRF’s Founder. When she started this organization, she understood that a cure for scleroderma would probably not come in her lifetime. But she knew that funding…
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
