Thank you all for an INCREDIBLE Scleroderma Awareness Month. You’ve inspired us with your initiative and creativity. Join us in giving a big shout out to another amazing effort—our collaborators at…
Read More
When Ken first studied Swiss-German artist Paul Klee in art school, he had no idea that he would be diagnosed in 2000 with the same disease Klee suffered from: scleroderma....
Read More
It’s National Kidney Month, and for those living with scleroderma, approximately 15% are affected by kidney problems. As one of those affected, Falguni (dx 2020) shares how her experience with scleroderma...
Read More
Today is Rare Disease Day. This month, you all have done so much to raise awareness of what it means to live with a rare disease, like scleroderma. Scleroderma, or systemic sclerosis,…
February is Black History Month. As we celebrate the rich culture of Black Americans, let’s raise awareness of how scleroderma affects this community. Research shows that African Americans tend to have…
Raynaud’s phenomenon is a common medical condition, and most people with Raynaud’s will not develop scleroderma. But, approximately 90% of those with scleroderma DO have Raynaud’s symptoms. For this reason,...
Read More
Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
Read More
Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
Read More
UPDATE: This event has now passed. Save the date: The Annual SRF Patient Forum is back this year on June 1, 2023! "Collaborating for a Cure," the SRF Patient Forum,...
Read More
Thinking back to her early symptoms, Kierra (dx 2020) remembers how “simple things like walking became a chore. My body felt like it was breaking down and I couldn't figure...
Read More
