ILD Day is here! Lung involvement is very common in patients with systemic scleroderma and may result in interstitial lung disease. Shortness of breath is a common symptom of all…
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We are proud to team up and collaborate with eight other organizations to drive awareness of interstitial lung disease (ILD) and to present the first-ever ILD Day on Wednesday, September...
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Rae is a medical researcher, a self-described nurturer and dreamer–and someone who lives with scleroderma. In our conversation with her, Rae talks about her journey to being diagnosed, how it...
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Scleroderma advocacy began with Juliana’s diagnosis. “The minute I found out about my rare condition, I started advocating for my rights,” she says, “and I then founded 10 regional groups,...
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Participating in research is crucial to finding a cure for scleroderma. SRF Cure Crew member Melissa talks about just this in a new 23andMe blog post. She participated in 23andMe's...
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Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. Diagnosed...
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In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
In this fourth story of Scleroderma Awareness Month, Jamie shares her passion for spreading the word about scleroderma. “I do not want future generations to have this bombshell diagnosis dropped…
For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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