“I learned the word scleroderma at the age of 18 when a rheumatologist explained why my hands were puffy and itchy,” Patty says. “I saw so many doctors during the...
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Today, on her birthday, we remember and honor Sharon Monsky, the SRF’s founder. Sharon understood that research is a journey, one that would not be completed in her lifetime. She…
Living with scleroderma hasn’t slowed Emily down. Two years after her diagnosis in 2016, she ran the Chicago Marathon to raise funds and awareness for research. Today, she says she...
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ILD Day is here! Lung involvement is very common in patients with systemic scleroderma and may result in interstitial lung disease. Shortness of breath is a common symptom of all…
We are proud to team up and collaborate with eight other organizations to drive awareness of interstitial lung disease (ILD) and to present the first-ever ILD Day on Wednesday, September...
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Rae is a medical researcher, a self-described nurturer and dreamer–and someone who lives with scleroderma. In our conversation with her, Rae talks about her journey to being diagnosed, how it...
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Scleroderma advocacy began with Juliana’s diagnosis. “The minute I found out about my rare condition, I started advocating for my rights,” she says, “and I then founded 10 regional groups,...
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Participating in research is crucial to finding a cure for scleroderma. SRF Cure Crew member Melissa talks about just this in a new 23andMe blog post. She participated in 23andMe's...
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Vivian loves “creating beautiful things that help people see that healing is not linear.” As an artist, makeup expert, and someone who lives with scleroderma, she speaks from experience. Diagnosed...
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In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
