Doris was diagnosed with scleroderma at age 46 and was given only 2-5 years to live. Now, she’s 62 years old. “I thank God every day for blessing me to...
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Raynaud's can affect people with scleroderma of all ages, like 7-year-old Alexis. Ever since their daughter Alexis was diagnosed with scleroderma at age 3, Meredith and Mike have learned a...
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This Raynauds Awareness Month, Dani shares her story and advocates for research. She was diagnosed with scleroderma in 2016—after noticing the classic signs of Raynaud's phenomenon. “Time has made me...
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Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make...
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For Pulmonary Hypertension Awareness Month, we asked Scleroderma Research Foundation (SRF) board member Bob Smith his thoughts on the need for additional therapies for treating scleroderma-associated pulmonary arterial hypertension (PAH). “We...
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“I learned the word scleroderma at the age of 18 when a rheumatologist explained why my hands were puffy and itchy,” Patty says. “I saw so many doctors during the...
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Today, on her birthday, we remember and honor Sharon Monsky, the SRF’s founder. Sharon understood that research is a journey, one that would not be completed in her lifetime. She…
Living with scleroderma hasn’t slowed Emily down. Two years after her diagnosis in 2016, she ran the Chicago Marathon to raise funds and awareness for research. Today, she says she...
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ILD Day is here! Lung involvement is very common in patients with systemic scleroderma and may result in interstitial lung disease. Shortness of breath is a common symptom of all…
We are proud to team up and collaborate with eight other organizations to drive awareness of interstitial lung disease (ILD) and to present the first-ever ILD Day on Wednesday, September...
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