Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
Read More
Today would’ve been the 69th birthday of Sharon Monsky, the SRF’s Founder. When she started this organization, she understood that a cure for scleroderma would probably not come in her lifetime. But she knew that funding…
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
Not enough people know what scleroderma is, or how to recognize the early signs of scleroderma. Even though it’s incredibly rare, everyone should know what to look out for. Early...
Read More
Did you know that approximately 15% of people living with scleroderma have Interstitial Lung Disease (ILD)? Next week, Wednesday, September 14 is National ILD Day. We're joining forces again with...
Read More
Project Scleroderma, a longtime partner organization of the SRF that raises scleroderma awareness globally, recently premiered their new documentary created with the team at New Pace Productions. It’s called Run…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
Read More
In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
Read More
Our third story of Scleroderma Awareness Month starts more than 31 years ago. Chip had “what I thought was an ingrown fingernail on my right index finger.” A game of...
Read More
“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
Read More
