“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
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Not enough people know what scleroderma is, or how to recognize the early signs of scleroderma. Even though it’s incredibly rare, everyone should know what to look out for. Early...
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Did you know that approximately 15% of people living with scleroderma have Interstitial Lung Disease (ILD)? Next week, Wednesday, September 14 is National ILD Day. We're joining forces again with...
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Project Scleroderma, a longtime partner organization of the SRF that raises scleroderma awareness globally, recently premiered their new documentary created with the team at New Pace Productions. It’s called Run…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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In 2014 at age 31, Katy was diagnosed with scleroderma. Though Katy has an identical twin sister (pictured here), they don’t share this diagnosis. This disease has been challenging for...
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Our third story of Scleroderma Awareness Month starts more than 31 years ago. Chip had “what I thought was an ingrown fingernail on my right index finger.” A game of...
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“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
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Last week, we held our inaugural Patient Forum, "Collaborating for a Cure." We were honored to have experts in the field of scleroderma research partnering with us to share information...
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For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
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