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Living with Scleroderma

Grace Shares Her Journey and Fundraises for Scleroderma Research

By December 8, 2025December 11th, 2025No Comments

At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events, and inspiring others to get involved in the search for better treatments and, one day, a cure.

Alongside her parents, Brian and Pamela, Grace is partnering with Jeep Jamboree USA to shine a light on the urgent need for scleroderma research. By sharing their journey, her family is helping raise awareness so that every family facing scleroderma can find answers and pursue better outcomes.

Thanks to the Pour Family, every donation up to $5,000 will be matched—doubling your impact to help advance vital scleroderma research. We’re deeply grateful to Grace and her family for using their voices, their time, and their generosity to support the scleroderma community and help accelerate research progress.

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