Living with Scleroderma

Kicking off Scleroderma Awareness Month 2022

By June 1, 2022September 26th, 2022No Comments

Today is the first day of Scleroderma Awareness Month. This month has always been marked by the remarkable way the scleroderma community comes together. So, we’re kicking off this month of working together towards a common goal with our first virtual SRF Patient Forum, Collaborating for a Cure. The forum is 9:00 a.m – 2:15 p.m. PDT/12:00 p.m. -5:15 p.m. EDT.

As June continues, we also invite you to #SayScleroderma with us. Not enough people know what scleroderma is or does. Lack of awareness causes delays in treatments and diagnosis. But together we can change this. 

You can start spreading the word now by sharing your story—using photos, videos, and words to tell people why you care about saying scleroderma. Or, whether online or in-person, ask your friends, families, and neighbors to join you in telling others about this disease. #SayScleroderma