“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
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Calling all federal employees or retirees—the Combined Federal Campaign (CFC) is now open! As the official workplace giving campaign for those employed by the federal government, the CFC has raised…
We’re so grateful to SRF Board Member Regina Hall for representing us at the Cantor Fitzgerald Charity Day this year! Every year, since 9/11/2001, Cantor Fitzgerald commemorates the 658 employees…
If you are in Austin, TX, you can support scleroderma research by going out to eat! Stop by any of the four Grove Wine Bar locations on Tuesday, June 28th...
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A huge thank you to Jeff Ross for his dedication as a longtime supporter of the SRF and scleroderma advocate. As a close friend of SRF Board Member Bob Saget,...
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For Teri, living with scleroderma means not only managing physical challenges but also lack of control she feels while doing so. “Scleroderma is part of my conscious mind every day,”...
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When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
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On a warm Texas evening this February, friends, and family gathered to play casino games, bet on silent auction items, and win raffle prizes at the 12th Annual Bet on...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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