Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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Thinking back to her early symptoms, Kierra (dx 2020) remembers how “simple things like walking became a chore. My body felt like it was breaking down and I couldn't figure...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
Calling all federal employees or retirees—the Combined Federal Campaign (CFC) is now open! As the official workplace giving campaign for those employed by the federal government, the CFC has raised…
We’re so grateful to SRF Board Member Regina Hall for representing us at the Cantor Fitzgerald Charity Day this year! Every year, since 9/11/2001, Cantor Fitzgerald commemorates the 658 employees…
If you are in Austin, TX, you can support scleroderma research by going out to eat! Stop by any of the four Grove Wine Bar locations on Tuesday, June 28th...
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A huge thank you to Jeff Ross for his dedication as a longtime supporter of the SRF and scleroderma advocate. As a close friend of SRF Board Member Bob Saget,...
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For Teri, living with scleroderma means not only managing physical challenges but also lack of control she feels while doing so. “Scleroderma is part of my conscious mind every day,”...
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When Maggie was diagnosed with scleroderma in 2019, she didn’t know anyone else with this disease. Her mom remembered that her neighbor had a niece, Erin, who had been living...
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