Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
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In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
Long-time SRF Cure Crew members and scleroderma advocates, the Connors-McBride and Zini family, continued their seven-year tradition of producing a comedy show called "Best Medicine" to raise funds for a...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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We remain overwhelmed by the outpouring of involvement and support from people across the world who are putting their talent and treasure towards the SRF, finding their own personal ways…
Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make...
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Prompting conversations about scleroderma that help to raise awareness about the disease and increase funds for research has been a life-long commitment for Will Whitehurst. "I believe so strongly in...
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Doing good comes in many different forms, and David Hinman’s story represents one such way. David's mother, Kathryn Daub Hinman, was diagnosed with scleroderma in the late 1970s. He recalls...
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“I learned the word scleroderma at the age of 18 when a rheumatologist explained why my hands were puffy and itchy,” Patty says. “I saw so many doctors during the...
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Dionna was seven years old when she lost her mother, Donna, to scleroderma. She says, “Scleroderma is a beast, the beast that took my mom away back in 2001.” That...
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