Anna loved her family, friends, and dancing. Though she was diagnosed with scleroderma at age 10, she lived the next three years of her life with confidence. She shared her...
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On a warm Texas evening this February, friends, and family gathered to play casino games, bet on silent auction items, and win raffle prizes at the 12th Annual Bet on...
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This is global Rare Disease Day, #RareDiseaseDay, a day where we join together worldwide to raise awareness about rare diseases. Today, in particular, our thoughts are with all those in...
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Greg was diagnosed with scleroderma in April 2017, after experiencing symptoms for three years. As he started to learn more about the disease, it struck him “how rare it was,…
In 1992, President George H. W. Bush met with SRF Founder Sharon Monsky and SRF Board Member Susan Feniger to honor their dedication to raising awareness about a rare and…
February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic...
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Long-time SRF Cure Crew members and scleroderma advocates, the Connors-McBride and Zini family, continued their seven-year tradition of producing a comedy show called "Best Medicine" to raise funds for a...
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SRF Board member Bob Saget always went above and beyond to help raise awareness about scleroderma and be an advocate for research to find a cure. His decades-long commitment to...
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We remain overwhelmed by the outpouring of involvement and support from people across the world who are putting their talent and treasure towards the SRF, finding their own personal ways…
Sophie Anne and her family are filled with hope, and they inspire us every single day to stay laser-focused on finding a cure. With your support, together we can make...
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