February 28th is global #RareDiseaseDay, and the Scleroderma Research Foundation stands with the rare disease community to help raise awareness—because being rare does not mean being alone. Scleroderma, or systemic sclerosis, is one of over 7,000 diseases identified as rare and affects approximately 100,000 people in the U.S. alone. It strikes men, women, and children of all ages and ethnicities. Here are some ways you can help raise awareness for all affected by a rare disease like scleroderma:
➡️ Check out the official toolkit at https://bit.ly/srf-rdd for resources and facts. Add a hashtag like #SayScleroderma or #SclerodermaAwareness, or tag us at @srfcure, to help raise awareness of scleroderma as a rare disease.
➡️ Join the FDA’s Rare Disease Day Webinar and learn more perspectives on and experiences in rare disease product development. Register now at https://bit.ly/fda-webinar-rdd
➡️ Share one fact about scleroderma with those in your network who may not know much about rare diseases—like a coworker, neighbor, or someone else in your local community. Find scleroderma info, statistics, glossary of terms, and more on our website here: https://bit.ly/srf-resources
What are you doing for #RareDiseaseDay?
