San Francisco, CA (June 25, 2024)—CONQUEST, a highly innovative platform clinical trial conceived of and led by the Scleroderma Research Foundation (SRF) and designed to rapidly advance promising treatments for...
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This month, members of the scleroderma community joined us to #SayScleroderma by sharing their valuable lifehacks, which are practical tips and strategies for navigating life with scleroderma. These lifehacks are...
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Hong Thu Nguyen's journey with scleroderma began in January 2021 with an unexpected change around her nails. "I remember around that time, the edges of my nails suddenly hardened,” she...
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“Scleroderma has changed every aspect of my life,” says Jennifer Zelnick (dx 2020). In early 2018, she first began experiencing symptoms when she felt numbness in her hands and feet….
June is Scleroderma Awareness Month, and Barbara (@simply_beeinlove) from Thriving with Scleroderma is choosing to spread the word with our custom #SayScleroderma frame. Why does Barbara #SayScleroderma? "I #SayScleroderma because...
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June is Scleroderma Awareness Month! Join us as we launch the #SayScleroderma campaign to bring attention to this disease, its complications, and the urgent need for research. Lack of awareness...
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It’s that time of year again! June marks Scleroderma Awareness Month— are you ready to spread the word? Why #SayScleroderma? Many people are unaware of what scleroderma is and the…
“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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