“She was an anomaly for the scleroderma world,” says Olivia Muñoz Mulkin of her mother, Maria “Missy” Cavazos. This Mother’s Day, as we celebrate the strength and love of mothers…
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Found a creative way to manage Raynaud's flare-ups? Got advice for how to stay organized while juggling doctor's appointments? Or discovered some other way to make your life easier while...
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February is Rare Disease Awareness Month. It's an opportunity for us to come together and raise awareness about what it means to live with a rare disease like #scleroderma. To...
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Give a big round of applause to the SRF Cure Crew—in 2023 alone, they raised more than $158,000 for research! The Cure Crew is a grassroots group of volunteers that...
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Amber was just nine years old when she was diagnosed with scleroderma in 1997. More than 20 years later, she looks back at her journey and how far she has...
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Last weekend, Greg Cohen ran the Chevron Houston Marathon to raise funds for the Scleroderma Research Foundation—and set a half marathon personal record while doing it! 🏃♂️ While there, he...
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Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
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“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
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Today is #WorldSclerodermaDay, a day created to tell people what it means to have scleroderma and recognize those who live with it. Join us today as we #SayScleroderma so that…
