Last year, Rae shared her journey to a scleroderma diagnosis with us. This year for Pulmonary Hypertension (PH) Awareness Month, we’ve followed up with her to learn more about the...
Read More
“I started to lose the color of my skin, and my fingers wouldn’t close all the way in a fist,” says Jessica, thinking of her early scleroderma symptoms. After talking…
We #SayScleroderma for #SclerodermaAwarenessMonth because not enough people know what this disease is or who it affects. Scleroderma is relatively rare. An estimated 300,000 Americans have scleroderma (about 100,000 with...
Read More
Today is #WorldSclerodermaDay, a day created to tell people what it means to have scleroderma and recognize those who live with it. Join us today as we #SayScleroderma so that…
If you are in Austin, TX, you can support scleroderma research by going out to eat! Stop by any of the four Grove Wine Bar locations on Tuesday, June 28th...
Read More
Our third story of Scleroderma Awareness Month starts more than 31 years ago. Chip had “what I thought was an ingrown fingernail on my right index finger.” A game of...
Read More
“While eating supper one night, five-year-old Kate showed her purple hands to my wife, Becky,” says Kate’s father, Matt. “She did so in amazement, but we were quite concerned.” Four...
Read More
Once again in June, Grove Wine Bar will join the Scleroderma Research Foundation’s campaign, #SayScleroderma, for Scleroderma Awareness Month. Over 400 employees will wear T-Shirts branded with the Grove, SRF,...
Read More
For our first story of Scleroderma Awareness Month 2022, we’re featuring Farah, who was diagnosed in 2006. “My very first symptoms started when I was about 17 years of age,”...
Read More
Today is the first day of Scleroderma Awareness Month. This month has always been marked by the remarkable way the scleroderma community comes together. So, we’re kicking off this month…
