SAN FRANCISCO (May 9, 2022) – The Scleroderma Research Foundation (SRF) will host its inaugural Virtual Patient Forum, Collaborating for a Cure, on Wednesday, June 1, 2022, to kick off...
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Kick off Scleroderma Awareness Month by attending the SRF’s Collaborating For a Cure, our inaugural Virtual Patient Forum! On June 1st, we’ll be hosting our first ever half-day Virtual Patient Forum for all those…
Looking to refresh on everything that's happened in June and catch up on the latest scleroderma news? Check out the SRF's eNews: June Edition. In addition to recapping highlights from...
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In this fifth story of Scleroderma Awareness month, Michael and Maddie share why they care about spreading awareness. Having lived with diabetes since age 8, Michael is no stranger to…
In this fourth story of Scleroderma Awareness Month, Jamie shares her passion for spreading the word about scleroderma. “I do not want future generations to have this bombshell diagnosis dropped…
For Sophie Anne, scleroderma is “the disease I have been diagnosed with, but it doesn’t change who I am.” She says, “It is important for me to stay active,” and…
This second story of Scleroderma Awareness month starts with a simple definition for scleroderma: “fight like hell.” This is how Ile views living with scleroderma. Though Ile first experienced Raynaud’s...
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For this first story of Scleroderma Awareness Month, meet Liz, who has lived with scleroderma since 1998. This summer marks an important landmark for her: 18 years post heart and…
Why #SayScleroderma? Because not enough people know what scleroderma is or does. Because lack of awareness causes delays in treatments and diagnosis. This is why we’re launching #SayScleroderma for Scleroderma…
