"Once they start talking [about scleroderma], then they start researching—and that's a step closer to the cure." — Sunny Sidhu (dx 1987) Sunny Sidhu was a filmmaker, dedicated advocate, and...
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For years, Rosa struggled with alarming symptoms, and like many people living with scleroderma, she was given several misdiagnoses before finally receiving an explanation. Today, Rosa is sharing her experiences...
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At just eight years old, Grace Pour was diagnosed with scleroderma. These days, she is a passionate advocate for scleroderma awareness, sharing her story with medical students, organizing fundraising events,...
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“I want people to know that you can live a full life with chronic illness,” shares She Shutes (diagnosed in 2017). “It’s not over—it’s just different.” In this video, she...
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Watch now: How Dr. Michael Longaker, Stanford University and SRF-Funded researcher, brings a unique perspective to solving scleroderma. Right now, you have a powerful opportunity to accelerate critical scleroderma research....
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Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare...
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February is Raynaud's Awareness Month, and we’re sharing stories that highlight the real impact of Raynaud’s and scleroderma. In this video, Anita reads a heartfelt letter written by her daughter,...
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"Our research would not be possible without the generous support of donors." – Ruslan Medzhitov, PhD, SRF-Funded Researcher Dr. Medzhitov, Yale School of Medicine & Howard Hughes Medical Institute,...
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"I have scleroderma, so I'm asking you to say it." —Cynthia, dx 2021 Why #SayScleroderma? Many people are unaware of what scleroderma is and the impact it has on those...
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