Elisabeth Shares Why We Need Rare Disease Research

Did you know that 300 million people worldwide live with a rare disease? In this video, Elisabeth K., PhD (dx 2021) shares why she believes that funding research on rare diseases, like scleroderma, is so critical.

As both a scientist and someone directly impacted by scleroderma, she lists the top 3 questions she has that she wants research to answer.

Be sure to join us for Rare Disease Day on February 28 to raise awareness and drive action for the rare disease community.