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Scleroderma Research News and Updates

It’s Scleroderma Awareness Month–Are You Ready to Spread the Word?

By June 1, 2025June 17th, 2025No Comments

It’s Scleroderma Awareness Month–are you ready to spread the word?

Why #SayScleroderma? Because everyone should know what this disease is and does. Because no one should have to live with this disease. Because a lack of awareness leads to delays in diagnosis and treatment. Because research is the best hope for a cure.

Together, we can spread more awareness and make a bigger impact than any one of us could alone—that’s why our organizations are teaming up this month to #SayScleroderma! 

The Scleroderma Research Foundation, Scleroderma Foundation of California, Scleroderma Foundation of Greater Chicago, Scleroderma Outreach Northwest, and more are working together to raise awareness—and we want you to join us!

There are many ways you can get involved:

📹 Share Your Story: Post a video on social media saying “scleroderma” and why awareness is important to you.

💬 Start Conversations: Talk to your friends, family, and colleagues about scleroderma. 

📣 Spread the Word: Share our #SayScleroderma social media posts and tag us (@srfcure, @sclerodermaca, @stopscleroderma, & @sclerodermaoutreachnw) to help reach even more people.

When we join forces as a community, we can create real progress towards better outcomes for those with scleroderma and finally find a cure for this disease.

 

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